~Links~
NEW ZEALAND
Heart Children NZ - New Zealand's only organisation dedicated solely to providing the support required by children with heart conditions and their families.
Starship Hospital (Auckland NZ) - where the Paediatric and Congenital Cardiac Centre (Ward 23B) is now situated (formerly Children's Heart Ward and Children's Heart Clinic of Greenlane Hospital).
Ronald McDonald House - where you can stay close to the hospital.
AUSTRALIA
For more information and other HLHS stories from Australia/New Zealand and other countries please visit the web site below.
Hearts of Hope Australia
Support and information for families living with complex congenital heart disorders
Royal
Children's Hospital Melbourne - (search HLHS)
AMERICA
I read a ‘huge’ amount of information from America in researching HLHS following Jakob’s diagnosis and prior to his birth and the following are the ‘most informative’ websites and articles I found.
Articles
Heart
Disease Online
- this was the very first article we found on HLHS and the ‘beginning’
of hope for us that surgery could eventuate in a positive outcome for our
‘wee’ boy.
eMedicine
- a highly technical but informative article on HLHS put together by
prominent surgeons and cardiac medical practitioners.
Websites
Children's
Hospital of Philadelphia
(search HLHS) – The Children’s
Hospital of Philadelphia
Children's
Healthcare of Atlanta
(search HLHS) – Children’s Healthcare of Atlanta
Children's
Heart Institute
(search HLHS)
Congenital
Heart Information Network
- lots of personal stories/portraits and support
network information